Medical Update for Josiah

We are going on 5 months home! A lot has happened in that 5 month span. One of the big changes is that we have made our local Children's hospital our home away from home. I had never walked through the doors before our guys came home. We are making up for lost time now! You may remember that Josiah spent much of his time in Ukraine in the hospital with pneumonia after pneumonia. He was hospitalized again shortly after he got home. At that point, we were connected with a whole group of specialists that promised to get to the bottom of his lung issues. We learned quickly many of the things it was NOT:) They did a swallow study shortly after that and found that he was aspirating quite a lot. His liquids were thickened and he has been healthy and growing like crazy. Along this whole time, he has been followed by ENT and audiologists. Both boys have had fluid in their ears with every test and have failed several hearing tests. After allergy meds did not fix the issue, both boys were scheduled to get ear tubes in and have their adenoids out this morning. Our ENT decided to go ahead with a bronchoscope for Josiah, even though he had already had 2 of them done in Ukraine with normal results. He felt since Josiah was already being put to sleep, that it would be a good chance to see for himself what was going on with his airway. Josiah was taken back into surgery and he did great. The surgeon came out to talk to us about an hour later and told us that the bronchoscope had indeed revealed the probable cause of Josiah's aspiration. The cause of the many many pulmonary infections from the very start. He showed us pictures he took during the test. Josiah has what is called a laryngeal cleft. It is a notch in the wall that is supposed to separate the esophagus and the trachea. This opening allows food/fluid to pass into the airway. His is bad enough to need surgical repair. So, after he is healed from today's surgery, in about 4 weeks or so, he will need to go back again. This time it is more intensive than an outpatient procedure. He will need to spend time in the hospital, possibly the ICU. This scares me so much, but I trust our specialist and I want Josiah to be healthy. Even if he were to drink nothing but thickened fluids the rest of his life, he still has reflux that threatens his health. He spits up literally some of everything he swallows. Food and liquid coming back up is as likely to get into his airway and cause damage and infection as it does going down. And so, I will once again trust God to protect this boy that has completely captured my heart in the last 6 months. I am so thankful for the amazing medical care that we have available right here in our own town. I cannot help but to imagine what even a few more months in Ukraine would have done to our Jojo's health. God's timing is indeed perfect.